Dear Daddy, Twenty-two years ago today you left this Earth. The last time I saw you was the night before you passed. I went to bed that night praying that you would pass away. You weren’t in pain thanks to the Hospice care but you were not living the life you wanted.
We still have a month of summer break but the clock is ticking. I only have a few more days left to make our choices for the 2020-21 School Year. This has been one of the hardest decisions I have ever had to make. So what do I do? I have 3
Every night I read to Emily, give her a kiss on the cheek and say “I love you Em”. And every night she gives me a smile, a little nod and touches her cheek but no words. She has only said I love you (not clearly but I know that’s what she
We are in our 9th week since the kids were last at school. We have 4 more weeks of remote learning and I have no idea if we will make it. This has been way harder than I ever expected. And I am realizing it is for reasons I never saw coming.
Last year I approached our principal to see if she would be willing to celebrate World Down syndrome Day by having the students and staff where fun, colorful, mismatched socks. Well she loved the idea and next thing I knew, I was giving a presentation to the 3rd, 4th and 5th grade
Last Tuesday morning I took Doug to the ER. He was thinking it was the flu. I wasn’t sure what it was but knew it wasn’t good. We were both shocked to find out he had a large blood clot in the center of his lungs. We later found out it was
Children with Down syndrome have a greater risk for obstructive sleep apnea. Emily is one of those children. According to ndss (national down syndrome society), anatomy is the main reason. Some of the factors include: low muscle tone in the mouth and upper airway, poor coordination of airway movements, narrowed air passages,
This past weekend FaceBook flooded me with memories of one of the best trips I have ever taken. Two years ago, Jena and I went to Universal Studios Orlando to do all things Harry Potter. Just the two of us. A mother daughter trip for two Harry Potter fans. I had no
There are days that I feel like I have accepted Emily’s Speech Apraxia. I am not happy about it but I understand this her path and I am doing what I can to help her. Then there are days like today when I hate it. I start to question everything I am
I was given a homework assignment from my business coach. She asked me to write a letter as if I was 85 years old. I needed to write how it felt to not follow through on my dreams. This letter has impacted me more than I imagined. It has made me realize